Sunday, November 9, 2014

It has been a weird day.

It has been a weird day.  My body and my brain are not in sync.  There have been times I felt like exercising, yet I would fall asleep. There was a time I was so drowsy on the couch, but I couldn't sleep because my arms and legs felt buck wild. I'm not a super fan of this weirdness. 😕

My biggest accomplishment today had to have been the amount of food I've eaten. It was a ridiculous amount and I could still eat more. I'm sure I will regret that soon.

I'm in my bed in hopes that I can sleep. I feel drowsy with no super wild body parts at the moment. Wish me luck. ❤

Saturday, November 8, 2014

I feel crazy cranky wild.

I feel crazy cranky wild. Physically mostly ok-ish, but I think these pills are making me mentally or emotionally JACKED UP.  I'm an unpleasant beast right now. 😳

What happens when I'm done with the pills?  I don't think they intend to keep me on them. Just wondering what the next step is...

It's been a weird day.

It's been a weird day.  Not really bad, but definitely weird.

I slept for about 8 hours last night.  It was lovely.   Dogs woke me up around 9:30, so I took care of all the kids, ate, and then took my first two pills.  Sat on the couch like a knot on a log - watching Andy Griffith and messaging my besties.  Was super pleasantly surprised that I haven't felt like barfing, though my stomach has felt a little off.  I guess that's normal and ok.

Don't know if my body just needed the rest or if it was the pills or what, but I fell asleep for a few more hours.  Woke up about 30 minutes ago.  Usually that much sleep gives me a sleep hangover, but not today.

I feel weird.  Body isn't TOO sore, skin is still nice like "Whoa."  A little jeebly in my guts.  Still having random shooty pains, but those aren't so bad.  Better than constant pain.  At least these are like little surprises.  LOL

About to eat and get the 2nd pair of pills down me.  Maybe after that I can stay awake for a while.

Friday, November 7, 2014

Heard from the doctor's office today.

Heard from the doctor's office today. They want me to come back either Thursday or Monday after I finish my steroid pills. They said we could talk and run some tests to see about doing a referral for me. So, I guess that is my plan for now.

Today I have felt ok. My lower back and thigh pain have mostly faded. My knees and hips are better than they've been in a long time. Even though it's chilly this evening my whole body isn't seized up and sore. That's amazing. 

The only complaint I have is slight back soreness and some random occasional shooty pains. I can live with that.

I have been freaking myself out all day with my skin. It is SO SOFT. My hair, too. I can't stop petting myself. When you've lived with sore, flaky, rough skin for so long - feeling like you have fresh soft baby skin suddenly is mind - blowing. Like, in a big way. I wish you could all touch my face right now, but that would gross me out. LOL

Anyway. Will start my steroid pills tomorrow and hope that goes ok.

So far today I have taken a nice hot shower.

Well, my dogs woke me up earlier than I'm used to and I couldn't get back to sleep.  I did sleep most of the night, though, so yay for that.  I needed it.

So far today I have taken a nice hot shower.  I used my medicated shampoo, even though my head wasn't really itchy or anything.  With the cold weather upon us I don't want to take any chances.  My psoriasis always worsens in the winter, so I figured I should stay on top of it.

This is probably super gross, but while I was in the shower I think I washed off 20 layers of face.  I try not to scratch my face even when it itches, but I often fail.  After the shot the other day either it stopped bothering me or I was too busy hurting to care about it, so (since psoriasis basically just causes you to produce extra skin all the time) I had A LOT of extra skin just hanging out on my face.

Yeah, also probably super gross to most of you - I hadn't washed my face since Wednesday.  I felt too bad, and it wasn't a priority, and over-washing with a skin condition often worsens things.  ON THE BRIGHT SIDE my face looks pretty much like a regular face today.  🙂  There was a patch of psoriasis on my chin that was so inflamed two weeks ago at the craft show in Alpine that a lady thought I was bleeding.  You can barely see it now - so that's something!

After my shower I put some of the medicated crème on some of my other spots.  Didn't do all of them because I want to see if it does anything or not.  Also wanted to make sure it doesn't like, chemical burn me or anything like that.  I've had that happen before, so I started small this time.

So, skin is feeling a lot better.  Yay for that!  Bones and muscles... not 100% (I'm still sore), but MUCH improved from yesterday so far.  I don't hate life yet today, so that's a really nice feeling.  LOL  Probably doesn't hurt that it's Friday, either.  I'm excited about getting paid and excited to have the weekend off.

I have decided that I will start my steroid pills tomorrow in case they do make me sick.  My boss is setting up for Winter Market (which starts later today), so she won't be in the office much if at all and I have some things that need to be done TODAY.  If I'm not functional that will be a problem, so I'll just wait.  I don't think it will hurt much to give it another day.  Doc didn't even tell me I was getting pills or that I should start them immediately, so it doesn't feel like a big deal.  If I'm doing it wrong, well, that's on him for being non-communicate-y.  I'm not going to worry about it.

So, Happy Friday, people.  I hope it's a good one for all of us!  ❤

Thursday, November 6, 2014

CAN. NOT. WIN.

Sat on the couch with Shaun.  Starting dozing.  Realized I might be able to sleep tonight, so I got up and took care of the furkids.  Now I've got a killer headache.

CAN. NOT. WIN.

Got my meds from the pharmacy today.

Got my meds from the pharmacy today.  Dr. Keel said that he was prescribing me an ointment for my psoriasis... what he failed to tell me is that I had 4 other prescriptions waiting.  😳

He prescribed me some Selsun Blue shampoo with an active ingredient of 3% Salicylic Acid, which is the same active ingredient in the Dermarest Shampoo that I told him I was using, (and yes, I told him also what the active ingredient was).  He also prescribed some Scalpicin for my head itch. I guess that's ok, but I could have gotten both of those products at Wal-Mart had I wanted them.

For the rest of my body he prescribed a hydrocortisone for itch (I don't really feel that I needed that, either - I'm not a fan of treating symptoms. I want to treat my problems.) He also gave me a steroid cream to TREAT my psoriasis - which I will use.

He also prescribed Methylpred - some steroid pills. I am scared to take them, but I will start them in the morning.

That steroid shot from yesterday has made me so sore in the muscles in the lower half of my body - as if sore joints weren't bad enough. I took Ibuprofen this morning, but it didn't do a thing.  I have been pretty damn miserable all day due to the pain and not being to sleep last night. So you can probably see why the thought of taking more steroids terrifies me. Not only that, but they are pills with nausea and dizziness as a side effect, like, in big red warning letters on the package.  🙁  I am super not happy about that.

It would be one thing if I didn't have to work or take care of my animals, but I do, and I really need to be functional.  My guys are being great and picking up extra things around the house and Shaun has been a big help, but damn.  I don't feel like myself.  This morning it took every bit of effort I had to drag myself out of bed and get ready for work.  I fed all the animals, but I didn't scoop litter boxes or anything like that.  It was just too much.  I WILL do all of that before I go to bed tonight, though.

I also called the doctor twice... once because of the muscle pain from the shot and once to get a referral.  I had to leave messages both times and no one called me back.  So yay for that crap.  I'm not super pleased with that place right now - I don't think he did tests or anything, then he just prescribed me a bunch of crap - half of which I don't need or want and one thing that I basically already have.  Not cool.

I am sorry if I'm coming off all whiny.  If I am it's because that's how I am IRL at the moment.  I am such a sad person right now.  I know that lots of people have it worse than me and that just makes me even sadder.  It maybe wouldn't be so bad if I had a knowledgeable doc on hand to explain shit to me, but I don't and I really like to know things.

Anyway, probably goes without saying that I'm not doing any shows this weekend, which sucks because I need money kind of a lot right now, but I just can't.  I am planning to take it easy until I feel better - however long that takes.

Later, friends.  I have work here to do.  😕