Monday, October 19, 2020

This is probably my last private post for a while (hopefully).

This is probably my last private post for a while (hopefully).  I will write a public post at some point later once I'm sure all of the family members have been informed.  Shaun's father passed away this morning.

Around midnight last night Shaun texted me and we had a little chat about how his care-taking duty was going.  It was actually pretty heart-warming.  He said he remembers calling to his parents from his old bedroom as a child and that this was a strange role reversal.  He said it wasn't so bad helping his dad up and down to get to the bathroom; they would just chat about random stuff while he tried to poop (which FIL hadn't done in about a week either due to the possible stroke found in the recent scans or his pain medication; we're not sure).  He said he wasn't stressed or grossed out - it was just something that needed to be done.  Some other relative had gotten FIL some adult pull-up style diapers and he'd been wearing those, which helped with the urine aspect of things.  It was so weird hearing him talking about changing his dad.  Regardless, hearing that he was doing ok with all that calmed my nerves a great deal and I actually slept a bit last night.

I woke up around 9 this morning to a phone call from a sobbing Shaun.  I could barely make out what he was saying but I heard that he needed me there and to be careful, so, instantly awake, I threw on some clothes and left the house.  When I got to the road that his father lives on I saw an ambulance leaving the driveway and then turning their lights off.  Unsure if FIL had passed I asked the first person I saw, which was an officer doing paperwork in the driveway, and he confirmed what I suspected.

Shaun was basically up with his dad all night.  Since FIL was so constipated, he wanted to try to use the bathroom frequently.  I didn't find out until this morning (Shaun was probably protecting me from it) but he said his dad moaned and writhed in pain almost all night despite the pain medication (which he wasn't doing at the hospital, so his condition had deteriorated); it was not a restful night for anyone.  At some point around 6 this morning, Shaun fell asleep.  He woke up around 8 to a relative calling to be let in because they were going to help him dress FIL and get him ready for his appointment.  He woke up to let them in, then went to check on his dad and found him unresponsive.  Relative (a nurse) started doing CPR while Shaun called 911.  His pacemaker / defibrillator started making noise and delivered a shock.  The paramedics arrived and tried CPR, to no avail.  At some point while that was going on, the pacemaker company called and asked about a weird rhythm showing up on their monitors a couple hours prior.  As far as I know the cause of death is that his heart stopped.  With having 10% function for so long, that is really not surprising.

After the coroner picked FIL up, we spent a few hours looking for documentation that the funeral home requested (with no success).  There were a lot of people around and it was really stressful.  Last night I had scheduled a grocery pick-up from Wal-Mart for the noon-1 timeslot today, so I told Shaun we should go get our groceries, go home, let him get some rest and come back later when he was feeling better and the house was empty.  We got home, he showered, ate, and crashed.  I feel so bad for him.  He says his body hurts from lifting his dad so much (he weighed 200 lbs and Shaun lifted him at least 20 times last night).

So... funeral stuff and estate stuff is where we are now.  That is also extremely stressful, but in a different way.  I know this sounds horrible but we are relieved that his dad is not suffering anymore because he definitely was and had been for a while.  Being unable to help that in any way was getting to us so bad.  I'm just grateful that Shaun had as good of a night as he could with him before he passed away.

Sunday, October 18, 2020

Small private update:

Small private update:

I got my husbang back yesterday.  When he got home, he showered, ate, and then crashed out a bit later.  He really needed the rest.

We spent almost all day today (with anxiety to the max) waiting to hear when FIL would be discharged from the hospital.  We thought that Shaun would be picking him up and taking him home.  Finally around 3 we called around and found out that he'd been discharged around noon and that the other relatives had gotten him home safe.  That's all fine and good, but some communication would have been nice.

In any case, no one else could take him for his scan tomorrow, so Shaun packed up and went to spend the night with his dad so he could take him to his appointment.  At least it'll be quiet and he'll have a bed and food this time.  And thankfully, he'll be able to un-mask in his bedroom.

SUPPOSEDLY the results should be ready within 24 hours and we're supposed to know something on Tuesday.  To be honest, I'm going to be really pissed off if that is not the case.  FIL looks like he's knocking on death's door (not to be insensitive, but he's 81 with 10% heart function and AT LEAST Stage 3 lung cancer, so nothing about this is good).

Aside from that the not-knowing is making me so anxious that I can't even think.  I am not trying to make this about me, but I will admit to not studying as much as I should have for that last quiz I bombed.  I felt better about the material than the 2/10 I made on the quiz, but after I had technical difficulties on top of me already being frazzled, it was game over for real and I knew it.  I just can't concentrate.  I'm worried, scared, anxious, and my home life is not calm or normal with Shaun having to do so much.

AND I'm terrified of him catching COVID while being so selfless and caring because the relatives that keep popping in and out do not wear masks.  After we get results if it turns out that Shaun has to move in with his dad temporarily, that will change because he's not risking himself every day for their comfort.  He doesn't want to start pissing people off if we're going to need their help in the near future, though.  If we won't need them, then he'll take care of his dad on his terms, but otherwise we can't alienate people right now.  His dad would hate that, anyway.

I guess I'm out of things to say.  All of this sucks and I hate it.  I will never put my children though this.

Saturday, October 17, 2020

This is another private post about my father-in-law (FIL) and his health.

This is another private post about my father-in-law (FIL) and his health.

Monday, FIL fell and laid in the floor for two and half hours until his brother-in-law found him.  They called a local relative and it took four people to get him up.  He said he didn't feel like he needed to see the doctor and went for a nap.  After he woke up he was no longer able to walk.  The relatives all convinced him that he needed to go to the hospital, so he did.

At the hospital they did CT scans on him.  We already knew about his lung cancer, but they saw something on his rib on the same side.  At first they thought it was a fracture from falling, but it turned out to be cancer on his rib which wasn't there a few weeks ago when he had his initial scan done.

FIL has remained hospitalized all week.  He's on an IV with nutrition in it (I'm sure there is a name for it, but I don't know what it is) to try to get his strength up (he hadn't been eating much due to nausea and vomiting).  He was supposed to have a PET scan done on Wednesday to diagnose what stage cancer he has so that treatment (if possible) could begin, but the hospital said it would be cheaper for him to have it done as outpatient, so it hasn't been done.  Note:  We waited 2 weeks to get that appointment and it didn't happen.  I don't know if it was the hospital or FIL who refused to do the scan, but regardless, it didn't happen.

He's been at the hospital all week.  His brother-in-law and sister were staying with him (taking turns since only one person is allowed), but something (I'm not sure what) happened with his brother-in-law yesterday and they decided they had to go.

Note:  Shaun works night shift right now, from 2 am to 7 am (work is slow right now).  I dropped him off at the hospital at 10 yesterday morning and he's been there now over 24 hours alone with his dad.  He had a Soylent (400 calorie shake) yesterday morning and hasn't eaten since (he doesn't feel safe removing his mask).  He's slept only a few minutes at a time.  He's been masked for 24 hours and his ears hurt.  He is miserable.  But his dad called us yesterday morning, sounding like he was at death's door and said that he needed Shaun.  So like a good son, he went.

They spoke to a social worker yesterday about his dad going to a nursing home rehab for three weeks to be able to walk again.  As far as I knew that was the plan.  But then a doctor came in and said that doing that would further delay his scan and possible treatment, so they are still there today, waiting to speak to another social worker.  The plan for the moment is that they are doing home health so that he can get his scan and treatment started, and THEN go to rehab.

That is all fine and good, but home health can only do so much so family is going to have to help FIL until he goes to rehab.  Unfortunately, Shaun is the only one who's strong enough to lift FIL to help him and to pick him up if he falls again, so it's looking to me like I might be without my husbang for a while.  I am sad.  I hate knowing that Shaun is unhappy.  He is a kind soul and will take care of his father, but this is extremely stressful for him and basically his worst fear realized.  And of course I am stressed to death, as well - because of course I am.

Anyway, that is what's up with that whole situation.  Nothing is going well and I feel like the hospital is trying to kill FIL by delaying his scans and by extension his treatment.  It's been about a month since the biopsy was done to confirm it was cancer.  For fuck's sake, FIL is 81 and already in rough shape.  It seems like doing things in a timely manner would be essential to helping him.  Or maybe COVID is impacting things and if that's the case, it's really bad timing to be getting cancer.  I don't know.  But this is an awful situation and we're all struggling.

Tuesday, October 13, 2020

I hope today gets better.

I hope today gets better.  I haven't slept well / much in the last two days.  I've also been exceptionally hot, to the point where I actually turned the air conditioner back on (we'd turned it off since the mornings have been cool recently).  Anyone who knows me knows that I don't get hot.  I wear long pants and hoodies in this Alabama heat.  I wear hoodies indoors 99% of the time.  There is always a blanket on me when I'm chilling on the couch.  But lately I am a sweaty mess.  After starting to cramp last night I'm thinking that these are fun new PMS symptoms.  Woohoo.  /sarcasm

Since I'm obviously feeling super great and rested and smart and patient, of course things went well with my quiz this morning.  I logged into the Team meeting and got called out for not having my webcam on, which was mandatory for taking the quiz.  But I had turned my camera on, and the switch at the top of the meeting showed that it was on; however, the screen where I should have appeared was black.  Just as well because when I tried to access the quiz with the password I couldn't do get it to work.  My computer froze up and crashed.  By this point I was far past flustered; I wasn't even sure I'd be allowed to take the quiz.  Thankfully, when I got booted up and rejoined the meeting (with a working camera this time), the professor let me take it.

There were only 4 questions and I made it through ONE.  Whatever happened with my computer, it wasn't a fast reboot and it was sluggish after that.  So opening the quiz took forever.  Me struggling through a problem took forever, as my anxiety was up and I was trying not to think about what the hell was wrong with my computer.  My concentration was gone.  Then when it was time to upload a photo of my work, that ALSO took forever.  It was awful and my grade is going to take a hit because of that.  (My teacher did give me the same amount of time as everyone else even though I joined the meeting a whopping 15 minutes late, but after struggling through one problem I knew that I wouldn't make it though a whole 'nother problem, especially with how slow my computer and my brain were running.)

ANYWAY.  I'm hoping that that was the worst part of my day.  If not, well, I don't even know.  But I hope your Tuesday started off less stressful than mine.

Monday, October 12, 2020